Monday, June 27, 2011

The Ups and Downs of Recovery

So I had this real long and well explained post about what all has happened these last two weeks and all of a sudden it got lost.  So instead of that you will get a short post because that took a lot of effort.

After David's Norwood procedure we were constantly told that the recovery was like a roller coaster, lots of ups and downs, but we never really experienced that.  David just kept on going up and up.  That has not been the case this time around for our little man.  Whether it was his excessively fast heart rate (at times 277-290) or it was the really bad pain issues or just having to be woken up every couple of hours for meds David has been in a pretty foul mood for the last two weeks.  He hasn't slept the best in the last couple of weeks, the only time he does sleep good is either in our arms or in our bed which we love but even then it's still not the best sleep or normal sleep for him.

The hardest part is when he coughs, because his sternum isn't healed yet when he coughs his rib cage kind of separates a little bit and he is in extreme pain and is inconsolable.The only thing to really make that go away is time so we are excited when he is fully healed up.

On the plus side David ate rice cereal for the first time tonight! It was pretty liquified but he took to the spoon like it was going out of style and seemed to like it so that makes the day ending on a good note.  He did awesome until he coughed again!  Overall it has been hard to see our boy hurting and not recovering as quick as we thought but we know he is on the road and is doing better every day.  We go back to the cardiologist int he morning for his post op check up and hopefully we will get some more answers and help for everything that is going on.  Thank all of you for your thoughts prayers and support.  We saw today where you all have visited this page 15,000 times since he's been born.  That is mind boggling to us that he has that much love and support out there...Thank you, we love you.  We will leave you with a pic of David's first foray into cereal.

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