Owner of A BrokenHeart

So first things first here is the pic of Day 2 of David's journey to awesomeness!






As many of you know yesterday David went from happy and healthy, to some small issues that a NICU visit was a precaution to flying to Louisville because he had heart defects (btw I like heart issues better...I know stupid PC stuff but he's not defective...I know I'm wierd) and open heart surgery was going to happen, so they discharged Nicole, we told the fams and we all made the trip to Kosair's Hospital in Louisville. Last Night/Today we were able to go back 2 at time to hang and be with David and love on him the best we can which consists of hand holding and a couple of times Cole and I have been able to hold him which has been awesome. Today we got to meet the Radiologists who has been working and diagnosing David and these are the issues:

1. Most people have 2 ventricles in their heart that pump very specific blood to either the lungs or the body. To the lungs they pump blood with little/no oxygen to get oxygen it then eventually gets to the other ventricle to be pumped into the rest of the body so that he can do his thing. Instead of two David has just one and both oxygen rich and no oxygen blood are mixing together in there. This is causing his lungs to work harder fluid to possibly build and not enough oxygen to get to the rest of his body.

2. His Aorta and Pulmonary arteries are switched. The amazing thing is that if he had just this issue it could have been deadly very quickly but because of issue #1 they compensated for each other.

3. He has a skinny aorta arch which restricts blood flow to the body.

4. To help with #3 they are going to try and keep open a valve that usually closes after birth. They are using a medicine to keep it open and hopefully it will stay that way to help with the blood flow.

So with all that being said it means that he will have to have 3 open heart surgeries. The first could/probably will be in a couple of weeks. Then #2 will be at 4-6 months and #3 at 2-3 years. They can't make two ventricles but they can work to make sure that enough of the oxygen rich blood goes to his body.

So we have figured out that Nicole and I have had 4 hours of sleep a piece since thursday at 9 so we are forcing ourselves to sleep. If you try and call chances are we won't answer. It is hard for us to talk with out crying...massively weeping actually. Texting is the best option but most of the time we will be back with him and be preoccupied. Last but not least, THANK YOU SO MUCH for your prayers and support we have cried for our grief and worry for Little Bit but we have cried out of the outpouring of love for David and us. Keep him and Cole in your prayers, she was discharged 11 hours after giving birth and while she is doing good she is sore and hurting and hurting for our worry. Thanks again.

D